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Months to live and all just so numb

So we were told this week that Luke has weeks to months to live and if he makes Xmas that is awesome.

We have been down this path before but with longer timeframes and it is all just surreal. We have been lucky enough to out live life expectancy by...

How is everyone going at the moment?

I just wanted open up this chat to see how everyone is going at the moment.

I know our emotions fluctuate a lot. The roll-a-coaster of cancer!

Recently I had a 3 days respite from my husband. We were at the point where we had nothing to talk about...

Comfy Bed Recommendations

My husband has bone cancer and we are looking to purchase a new bed for better comfort for him and also me. As he often wakes in the night which then wakes me.

Can anyone recommend a bed which they have purchased which is comfy for the patient. His...

Dealing With the Fear of Recurrence When Your Child Survived Cancer

It is very common for parents of a child who has had cancer to be afraid of cancer coming back (recurrence). Of course it’s also normal for your child and other members of the family to share the same fear. Here are some tips on how to cope with...

People not understanding

I've touched on this before, my daughter and I are living away from home as she gets leukaemia treatment in Townsville. Both her and I talk to social workers a lot but I feel that they don't really understand how a 20 year old feels especially when she...

Introduce Yourself!

Welcome to the CanTeen Connect Parent Forums. Tell us about yourself. :)

Supporting young people through end of school exams

Hi all, With the end of school exams (called the HSC here in NSW) and trial exams coming up, what kind of tips and strategies do you use to help your child get through when dealing with the added stress of cancer?

For young adults aged18-20

Not being enough support for this age group

Acute Lymphoblastic Leukemia

Introducing my daughter and myself

Dumb arse things people say

Upfront I'd like to acknowledge that I'm sure people just want to connect and I'm positive that the majority of people are coming from a place of love and support, and they don't want to hurt with the things they say. Nonetheless I've been hit with some...

NDIS

Has anyone with a partner with cancer had any luck getting NDIS? My husband was diagnosed with leukaemia in 2014 now in remission and kidney failure in 2016 now on dialysis. He has multiple functional disabilities caused from his medical conditions....

Family communication and mobile technology

When we're talking to parents about how to best communicate to their kids, we here at the CanTeen Connect team often talk about one main topic of frustration - mobiles! And importantly, encouraging young people to look up from their screens for long to...

To financially or emotionally be stable

So I am in a dilemma! My husband is terminal and hasn’t worked for 4 years now. 12 mths ago I took a redundancy as we were told he has 12 to 24 mths. Paid as much as we could off the mortgage (still have one!). In Aug I went...

Moving through it

My wife died at home, some 27 months ago. Although on the surface we're "amazing" (my 2 daughters 20, 16 and I), on reality we're all sad, lonely and (dare I say it) depressed... and it still sucks. It doesn't really get any easier, you just...

Promoting CanTeen Connect for Parents in the media

Hi everyone - my name is Kerry and I have been working at CanTeen for six years. Firstly, I hope you are all finding this community a great source of support. Many of you have shared incredibly moving stories, thank you.

In order to help as many as...

We don't "move on" from grief

Here's a TEDtalk on grief that may be of interest: In a talk that's by turns heartbreaking and hilarious, writer and podcaster Nora McInerny shares her hard-earned wisdom about life and death. Her candid approach to something that will, let's face it, us...

Moving Forward with Grief

Hey all... Cara from the Online Team here. I was a bit inspired by the "Dumb Arse Things People Say" thread, to start the convo here about grief, and perhaps what others told you to expect when your loved one died, and in the time since.

There's a great...

Supporting Each Other

Share your tips and resources with other CanTeen Connect parents.

My husband has cancer- he’s acting like there’s nothing wrong with him and I’m so stressed out I don’t know what to do. I’m a parent of a 9 year old boy and 11 year old girl.

Things are so difficult right now. I’m trying to work, care for my husband, look after 2 distressed young children, do everything and not lose my mind. It feels like my partner who has cancer is minimising his health and pretending to the world he’s not...

How to Deal With Grief in Front of Your Children When Your Partner Died From Cancer

Even though you may have known your partner was going to die, nothing can prepare you for the grief you feel when it happens. It can feel overwhelming at times. On top of that, you may be trying to hide your grief from your children or worried about how...